Real People With Dysautonomia: Paige

Blond woman in dress.  Caption reads
Blond woman in dress.  Caption reads "real people with dysautonomia: Paige

In September of 2021, Paige King, 52, of Springfield, MO started experiencing episodes of syncope, or a loss of consciousness for a period of time.  As someone with a medical background, she was concerned.  Paige is a school nurse in her district working as a substitute two to three days a week.

"I still have not received a formal diagnosis {of POTS}, but by exclusion of many things, it’s looking like that’s what it is.  Many of my doctors are reluctant to label it as such.  

I was diagnosed with lupus 25 years ago.  I’ve had POTS associated symptoms for several years, but am finally putting the pieces together over the past few months.  I’ve experienced fatigue, brain fog, lightheadedness, shortness of breath, heart pounding, diarrhea, headaches, and persistent dehydration.  My symptoms are exacerbated by stress and lack of sleep.  

I’ve yet to find a doctor who is very familiar with POTS.  My small successes have been personal.  Through trial and error, I’ve found what works to help my symptoms.  Of all the things I’ve tried, Normalyte has helped the most.  I drink anywhere between 2-8 packets a day depending on my symptoms."

Often times, it can take up to seven years to receive a diagnosis of postural orthostatic tachycardia syndrome (or POTS).  Paige is no exception.

"I’ve been seen by my PCP and rheumatologist.  I have upcoming appointments with a cardiologist, gastroenterologist, and a functional medicine doctor."

Paige says she manages her symptoms by ensuring she gets 7-8 hours of sleep a day.

"Making sure I get 7-8 hours of sleep, drinking Normalyte throughout the day, keeping my stress levels as low as possible. Be aware of how much stress can impact your entire life.  Take care of your body and it will take care of you.  My {work} schedule allows me to rest in between shifts."

At the end of the day, there's always a glimmer of hope and people who will get you through.  Paige has been married to her high school sweetheart for 30 years with a 20 year old daughter and two dogs.  She credits her family and friends as being her biggest supporters.

"My family and tribe of girlfriends support me and are interested in my diagnosis.  I’ve explained to coworkers that I sometimes feel lightheaded when I’m on my feet for long periods of time, but I don't expect anyone to fully understand."

The self proclaimed queen of organizing doesn't let her diagnosis run her life.

"I love to walk in nature.  I am a huge foodie and love to try new places. I love to travel and have a trip planned to Hawaii this summer.  I also have a passion for interior decorating as well as decorating for the holidays."

    1 comment

    • Mike Dilallo

      Paige, we plan to move to Springfield in early’26 in the Rountree area. Our daughter (22) has had Dysautonomia/ POTS /EDS with symptoms for nearly 10 years. Is ther good care in Springfield area. Most of her care is GI/Cardio/Neuro plus some functional medicine. Hoping you can be a source of good information for us!

    Leave a comment

    Please note, comments must be approved before they are published

    This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.